Comments on the KIT meeting at Windlesham
This will take place on the 30th of June at Windlesham Golf Club just off junction 3 on the M3. See KIT Meetings page for full details.
There was a KIT Meeting at the Holiday Inn Express Poole on the 21st of April underneath are some of the photos taken at a this very successful event
we met for coffee at 10.00.a.m followed by a talk from Sunni Narayan, Senior Carer Advisor at Southampton Hospital. Lunch was at 1.30.p.m.
This took place at the Milford Hotel,
Great North Road,
LS 25 5LQ
Despite the weather a good time was had by all old friends and new alike.
A number of changes are being made offline to hopefully make the site easier to navigate. Until these are complete the site will remain in the same form it is now. During the work, over 6000 spam messages were deleted from the posts and comment sections and a spam filter has now been installed on the site to try to prevent any further attacks.
In looking at the site it is clear that Isobel Sutcliffe must have put in a huge amount of work and we must be very grateful for this.
Until the revised layout is ready we will continue to post on this site as it is as the revision are taking a great deal of time.
It is also clear that much of the content is in need of updating a and we hope to do this at the same time
We have just returned from a very enjoyable weekend in Cambridge which included attending an MFSN ‘KIT’ (Keep in Touch) meeting on Saturday 9th.
When I was first diagnosed with IBM I shrank away from meeting other warriors “further down the line” from me. Having done so though, at a support group conference, I quickly realised how interesting and encouraging the information shared was, not only for me, but also for my carer/husband.
This latest meet-up was once again as informative and enjoyable as others we have held, due to to the organisational skills of our Joy Walker and the excellent Holiday Inn venue. The hotel was ‘disabled friendly’ and the staff most helpful and accommodating.
The weekend started for me on the Friday evening when 9 of us, 6 of whom were staying overnight, had dinner together. It quickly felt like meeting old friends and we had a most enjoyable time.
We had a record number of 39 Myositis Warriors and their partners/ carers for the meeting the next day. After a meet and greet time over coffee, we were able to use one of the function rooms, complete with projector and screen for the speakers and plenty of room for our ‘equipment’?
Richard Tear, Chairman of MFSN welcomed everyone and gave a brief but positive update on the progress of the group. He then introduced our first speaker, Andrea Russell, who is the area co-ordinator for a specific neuromuscular support service covering Norfolk and Suffolk. Andrea said that this is a new initiative and it was hoped to roll out the service nationally. She spoke about the work of the service including advice on swallowing problems, exercise, hydrotherapy, and available equipment. She mentioned a manual of equipment which is being produced in conjunction with Muscular Dystrophy UK. This was followed by a very helpful question and answer session.
Anneke Liefting, South East Regional Development Manager then picked up on some of the points made by Andrea and shared about Muscular Dystrophy’s involvement and support for Myositis sufferers including an advice ‘hotline’. She also encouraged us with ideas on how to get involved with fund raising to help finance events like this one.
Finally, David Morgan accompanied by his assistance dog Dalton, stole the show by giving a description and demonstration of how Dalton helps him in daily life.
It was very hard to hold back from giving Dalton lots of fuss, we couldn’t of course while he was working!
A delicious lunch of chicken or salmon was served in the restaurant, followed by desserts and a time to chat and make new friends.