Dermatomyositis

In Dermatomyositsis (der-mat-oh-my-oh-sigh-tis) a distinctive reddish/purplish rash occurs over the face, head, neck and chest due to inflammation of surface blood vessels. The rash may also occur on the upper back, knees and ankles. The muscles of the shoulders, upper arms, hips and thighs display the most weakness. Periods of remission where symptoms disappear spontaneously can occur with DM.

3 thoughts on “Dermatomyositis

  1. Hi Terry , thanks for your reply.
    I did a comment back to you last week but it seems to have disappeared in Cyber Space ???
    Hope this one doesn’t.
    So we have had the DM diagnosis the same sort of time . I have had Lung Fibrosis all that time, kept in check with Cellcept and a small amount of Pred.My lungs appear to have got worse lately, I am waiting for a CT scan to see if its fibrosis or inflammation.
    Keep in touch, we have a good Facebook group if you want to join us.
    All the best
    Christine DM/ILD.

  2. Hi everyone,
    I have Dermatomyositis with Lung involvement too.
    I was diagnosed 12 years ago, after being misdiagnosed for over 6 months.
    I feel that emotional support is what has helped me to deal with everything, both giving and receiving support.

    Looking forward to interacting with new people, with all types of Myositis, and their friends and families too.

    Merry Christmas to all.
    Christine DM/ILD. Yorkshire.

    1. Christine
      Have had DM for 12 years now
      Although only recently started having lung complications
      I am lucky in that, after many years of things getting worse
      To the stage where I couldn’t walk, I found that using a vibration plate
      Toned me up, and whilst none of the drugs really helped
      Over time things got better or at least more manageable !
      Hope things go well for you

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