We want people to know that they are not alone with a diagnosis of Myositis. There is an extensive network of people who will offer a helping hand and guide you through the difficult times. Whether you are a patient, family member or carer.
It can be painful coming to terms with what life has handed you and making the necessary adaptations, This group was setup to provide support and advice, from others with a connection to all forms of myositis.
Our collective experience has been built up over a number or years of being patients with some form of Myositis, or supporting people with Myositis. We have learnt how important it is to find other people with these conditions, and to be able to come to offer our experience to help them through their illness, especially people who are awaiting for confirmation or newly diagnosed.
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