Our hope is that together with our Facebook pages and Keep in Touch meetings (KIT) we can create a vibrant community that will achieve our aims and objectives - awareness and support of the Myositis community here in the UK. We aim to provide people with a safe place they can come to and discuss, seek advice and share their triumphs, in their ongoing fight against Myositis
Our Aims and Objectives are:
Provide support to all sufferers, carers and families
Raise awareness of all the myositis diseases
Raise funds to support our objectives
We want people to know that they are not alone with a diagnosis of Myositis. There is an extensive network of people who will offer a helping hand and guide you through the difficult times.
Whether you are a patient, family member or carer, it can be painful coming to terms with what life has handed you and making the necessary adaptations. This group was set up to provide support and advice, from others with a connection to all forms of myositis.
Our collective experience has been built up over a number or years of being patients with some form of Myositis, or supporting people with Myositis. We have learnt how important it is to find other people with these conditions, and to be able to come to offer our experience to help them through their illness, especially people who are waiting for confirmation or newly diagnosed.
What do we spend money on? Meet-ups at various venues, small gifts for members having a tough time, and we would like to be able to help members financially in purchasing items of equipment when funds are at a sufficient level.